So tomorrow is admission day, my bag is packed, my crutches etc are labelled and my muscles feel like they have been torn to shreds!
I'm hoping that I will come back from a (largely) drug free (and therefore relatively coherent) hospital stay with a Pukka Pad full of writing-although discovering that the only answer to reading in hospital is to take my kindle may distract me-as well as a new appreciation of how a body is supposed to move and a plan to keep mine moving!
The truth is this is my chance to do everything I can to avoid the rather dire prediction of my Rheumatologist that having looked at my scans I will have at most two years before ending up in a wheelchair. There is nothing I can do about the existing damage (other than to ignore it with whatever help my largely ineffective-the best EDS side effect-pain killers can give me) or limit the future damage.
So off I go for a week of intensive physio and hydrotherapy with the intense hope that the pain I am currently feeling is due to overdoing the packing rather than a fibromyalgia flare up. Wish me luck!!
I'm hoping that I will come back from a (largely) drug free (and therefore relatively coherent) hospital stay with a Pukka Pad full of writing-although discovering that the only answer to reading in hospital is to take my kindle may distract me-as well as a new appreciation of how a body is supposed to move and a plan to keep mine moving!
The truth is this is my chance to do everything I can to avoid the rather dire prediction of my Rheumatologist that having looked at my scans I will have at most two years before ending up in a wheelchair. There is nothing I can do about the existing damage (other than to ignore it with whatever help my largely ineffective-the best EDS side effect-pain killers can give me) or limit the future damage.
So off I go for a week of intensive physio and hydrotherapy with the intense hope that the pain I am currently feeling is due to overdoing the packing rather than a fibromyalgia flare up. Wish me luck!!
1 comment:
Well done for winning our comp. All at didicar HQ wish you all the best with your treatment this week. Good luck and keep well!
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